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Daniel G. \"Govende\" McG
Guest
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| Posted: Mon Aug 22, 2005 10:29 pm
Post subject: Explanation of type of behavior? |
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There are a number of things about me that cannot be easily understood
by some staff at the Broome Developmental Center. One of them is the
fact that I may not be able to perform a task sometimes, even though I
had performed the same task in the past. For example, I am able to
take a shower by myself sometimes, but not always--it must all depend
on the way my mind is and the mood that I am in--and the BDC staff
just find it hard to understand how anyone's behavior could be like
that. Is there a name for this type of situation where a person
should have the ability to do something in at least one instance but
not _all_ of the time? It would be nice if this had a name; it would
probably make it easier for the staff to understand the behavior.
- Daniel al-Autistiqui
--
Daniel Gerard McGrath: a/k/a "Govende"
I have the developmental disability Autism.
To e-mail me, remove the six upper-case letters at
the beginning of my address.
[This signature is under construction.]
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Peter Duncanson
Guest
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| Posted: Fri Aug 26, 2005 8:08 pm
Post subject: Re: Explanation of type of behavior? |
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On Mon, 22 Aug 2005 12:29:11 -0400, "Daniel G. \"Govende\" McGrath"
<AUTISMgovende30@hotmail.com> wrote:
| Quote: | There are a number of things about me that cannot be easily understood
by some staff at the Broome Developmental Center. One of them is the
fact that I may not be able to perform a task sometimes, even though I
had performed the same task in the past. For example, I am able to
take a shower by myself sometimes, but not always--it must all depend
on the way my mind is and the mood that I am in--and the BDC staff
just find it hard to understand how anyone's behavior could be like
that. Is there a name for this type of situation where a person
should have the ability to do something in at least one instance but
not _all_ of the time? It would be nice if this had a name; it would
probably make it easier for the staff to understand the behavior.
- Daniel al-Autistiqui
|
There is a phrase used to describe a disease in which the symptoms come
and go. The phrase is "episodic condition". I guess this phrase could
also be used to describe an ability that comes and goes.
Other words used in place of "episodic" are "fluctuating" and
"intermittent"
--
Peter Duncanson
UK (posting from a.u.e) |
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jerry_friedman@yahoo.com
Guest
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| Posted: Fri Aug 26, 2005 11:02 pm
Post subject: Re: Explanation of type of behavior? |
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Daniel G. "Govende" McGrath wrote:
| Quote: | There are a number of things about me that cannot be easily understood
by some staff at the Broome Developmental Center. One of them is the
fact that I may not be able to perform a task sometimes, even though I
had performed the same task in the past. For example, I am able to
take a shower by myself sometimes, but not always--it must all depend
on the way my mind is and the mood that I am in--and the BDC staff
just find it hard to understand how anyone's behavior could be like
that. Is there a name for this type of situation where a person
should have the ability to do something in at least one instance but
not _all_ of the time? It would be nice if this had a name; it would
probably make it easier for the staff to understand the behavior.
|
I would think that the staff at a developmental center with autistic
residents should have no trouble understanding this sort of thing. If
they do have trouble, I would think that other staff members--maybe
psychologists and psychiatrists--could explain it. If you do ask some
staff members to help you with the problem of explaining it, I strongly
advise you to do it the way you did here, without mentioning any names.
People often get upset if they find out you complained about them to
co-workers or especially to superiors, and they could retaliate against
you (or possibly against your family), so I suggest you save
complaining for matters you really can't accept.
(I apologize if you think I'm telling you obvious things and you resent
it. I understand that autistics typically have trouble imagining how
other people will feel and what they'll do, so I'm just trying to make
sure you see these points.)
If staff members are saying things to you like, "How can you possibly
need help with your shower? You showered by yourself fine yesterday!"
then they could just be expressing frustration, in which case all you
need to say is "Sorry." They could also want an answer in terms of how
you feel at the time compared to how you felt at previous times.
Explaining how you feel might help. If you can't explain it, you might
want to say so.
Another thing you can say is something like, "A lot of people with
disabilities have good days and bad days. Even if it doesn't show when
you look at me, my disability is bad today."
If you want to try any of my suggestions, maybe you should talk it over
first with someone who's more familiar with your situation.
--
Jerry Friedman
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PromaBoss
Guest
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| Posted: Sat Aug 27, 2005 8:43 pm
Post subject: Re: Explanation of type of behavior? |
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this is exaclty same for me and i jsit put it down to overloading i have got
a chairity doing a housing report for me
i was shown the report so far and on cooking for myself it said i can cook
but only just cook a piece of meat and not do any vegetabels
i said that needs to be reworded as in fact i can cook ,its just coooking
meat and vegetable/maijng a drink and perhaps something else happeing at
same tiome will oveload me,so if on own i normally just cook the onwe thing.
again if i was upset about something then yes again a task i did before
becomes impossible i overload completelyt the reason it can be differant
things is becasue one never knows whats going to occupy ones mind at any
time,i may get up and be completelry fixated on something that means i may
make mistakes or forget things,next day mind may be clearer so i do the
things i did and could not day before
but as you say people just dont understand they just thin k your obsitinate
and olazy
rregards,paul
"Peter Duncanson" <mail@peterduncanson.net> wrote in message
news:f88ug1p3g3imp43h7g101g8hgakjpatsap@4ax.com...
| Quote: | On Mon, 22 Aug 2005 12:29:11 -0400, "Daniel G. \"Govende\" McGrath"
AUTISMgovende30@hotmail.com> wrote:
There are a number of things about me that cannot be easily understood
by some staff at the Broome Developmental Center. One of them is the
fact that I may not be able to perform a task sometimes, even though I
had performed the same task in the past. For example, I am able to
take a shower by myself sometimes, but not always--it must all depend
on the way my mind is and the mood that I am in--and the BDC staff
just find it hard to understand how anyone's behavior could be like
that. Is there a name for this type of situation where a person
should have the ability to do something in at least one instance but
not _all_ of the time? It would be nice if this had a name; it would
probably make it easier for the staff to understand the behavior.
- Daniel al-Autistiqui
There is a phrase used to describe a disease in which the symptoms come
and go. The phrase is "episodic condition". I guess this phrase could
also be used to describe an ability that comes and goes.
Other words used in place of "episodic" are "fluctuating" and
"intermittent"
--
Peter Duncanson
UK (posting from a.u.e) |
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Don Phillipson
Guest
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| Posted: Sat Aug 27, 2005 9:42 pm
Post subject: Re: Explanation of type of behavior? |
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"PromaBoss" <Promaboss@ntlworld.com> wrote in message
news:M__Pe.126$x4.64@newsfe4-gui.ntli.net...
| Quote: | this is exaclty same for me and i jsit put it down to overloading i have
got
a chairity doing a housing report for me
i was shown the report so far and on cooking for myself it said i can cook
but only just cook a piece of meat and not do any vegetabels
i said that needs to be reworded as in fact i can cook ,its just coooking
meat and vegetable/maijng a drink and perhaps something else happeing at
same tiome will oveload me,so if on own i normally just cook the onwe
thing. |
You have probably misunderstood. The charity's housing
report does not deal with your dietary preferences or skill
with a skillet. It answers the question whether your housing
arrangements allow you too cook for yourself (if you have
the interest in doing so.) Some lodgings do and others
do not include such facilities.
--
Don Phillipson
Carlsbad Springs
(Ottawa, Canada) |
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Troy Steadman
Guest
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| Posted: Sat Aug 27, 2005 10:41 pm
Post subject: Re: Explanation of type of behavior? |
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PromaBoss wrote:
| Quote: | this is exaclty same for me and i jsit put it down to overloading i have got
a chairity doing a housing report for me
i was shown the report so far and on cooking for myself it said i can cook
but only just cook a piece of meat and not do any vegetabels
i said that needs to be reworded as in fact i can cook ,its just coooking
meat and vegetable/maijng a drink and perhaps something else happeing at
same tiome will oveload me,so if on own i normally just cook the onwe thing.
again if i was upset about something then yes again a task i did before
becomes impossible i overload completelyt the reason it can be differant
things is becasue one never knows whats going to occupy ones mind at any
time,i may get up and be completelry fixated on something that means i may
make mistakes or forget things,next day mind may be clearer so i do the
things i did and could not day before
but as you say people just dont understand they just thin k your obsitinate
and olazy
|
I think that sort of thing is not unusual. My father was very
intelligent as an accountant but there were only two things he could
cook: a poached egg or an apple pie! Whenever Mum went into hospital
that's what we had!
I used to play chess and there is an inverse correlation between top
players and their ability to tie their own shoe laces. |
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PromaBoss
Guest
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| Posted: Sun Aug 28, 2005 4:17 am
Post subject: Re: Explanation of type of behavior? |
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the question was to do with whether i can cook for myself or need
assisitance.
now yes i can cook for myself most times,but most times i would simply cook
one piecoe of meat and thats it,so not a health diet,and thats is part of
the quaetion
"are you able to preapre and cook a well balanced meal"
so for me its not a case of saying no i defiantely cant,it needed to be
said,it depends on other factors being present,and in terms of social
services support someone coming in daily to help or make sure i am not
leaving ovens and grills on.
and because all things i do interlinkl with each other again i need daily
supervision,amiking sure in all areas i am getiing done and living ok.
what we were trying to convery is in everything i do i need support but it
does not mean 24/7 or in same way each day,one day i might be cooking a 3
course dinner,but forget my banking,next day i may be doing banking and
forget to eat,foget to put rubbish out for refuse collector or any manner of
differant things
wheras as someone with a physical dissability the support they may need is
constantly for same thing every day,this is not so for me,but i do need
someone cheking up on me every day.
it also may point ot the fact it may be safer to put me somewhere with no
oven or grill,perhaps only a microwave and toaster,or something like that.
he sent the report to me to llok at before he comes back again to see me and
parents next week.
trouble is social services arre not duty bound to do anything this reports
states,but it wolud be unwise for them to ignore it with current diabled
legislation,if a specialsit charity hosiuing group has assessed my needs
with me and my parents then to say its all not needed by council would be
folly.
but as yet i have no interest in leaving parents the whole idea of that is
worrying and frightening,i have tried in past ot live on own but i never
coped
regards,paul
| Quote: | You have probably misunderstood. The charity's housing
report does not deal with your dietary preferences or skill
with a skillet. It answers the question whether your housing
arrangements allow you too cook for yourself (if you have
the interest in doing so.) Some lodgings do and others
do not include such facilities.
--
Don Phillipson
Carlsbad Springs
(Ottawa, Canada)
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odessanme
Joined: 11 Sep 2005
Posts: 1
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| Posted: Sun Sep 11, 2005 3:53 am
Post subject: |
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Daniel,
I response to your posting about a specific behavior, I have only one suggestion. From my experience of working with autistic individuals, I have found that keeping the required tasks to a minimal but within a time frame has shown the most success. Now this all depends on what tasks you are being asked to preform which you did not specify.
Dosvidanie |
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